LIFE, DEATH, AND TERRI SCHIAVO
The Terri Schiavo autopsy report that was made public yesterday has many in the shadow media gloating and some, like myself and a few other secular social conservatives, reflecting on what the fight meant then and what it will mean for the future.
Who was right? Who was wrong?
First, the particulars of the autopsy show that Terri was indeed probably in a persistent vegetative state. While this is something that can’t be determined for certain after death, given the state of her brain (not liquified) and the “loss of neurons”, it seems more than likely that Terri didn’t have either the capacity or potential for rational thought. It appears also that the vision cortex was totally disabled making her blind. And her ability to swallow was extremely limited, thus ruling out the possibility that any food or water could have been administered sans feeding tube.
In addition, the report showed no evidence of abuse by Michael Schiavo. However, it also found no evidence of any eating disorder that would have explained her initial collapse. Nor did the autopsy address the strange deterioration of Terri’s brain over a 3 day period in March of 1990 where she went from being in a coma with near normal brain function to her being in a persistent vegetative state. This is the basis on which Michael Schiavo received his settlement from the doctors, the hospital, and the ambulance service and the autopsy could not determine how her deterioration occurred.
These facts show that hope for any improvement in Terri’s condition was misplaced and that her husband Michael did not abuse her while she was in the hospice. She died of dehydration.
Do I still believe that Terri Schiavo died needlessly? The answer is a qualified yes. I also believe that this debate over what to do about people like Terri is just getting started and I hope we’ve all learned some valuable lessons. I hope we’ve learned how easy it is for this kind of ethical debate to be hijacked by those on both sides of the issue with personal agendas. I hope we’ve learned that if we’re ever going to come to a consensus that we must somehow learn to talk to each other rather than past each other. And I hope we’ve learned that whatever side of this issue you came down on, the person on the other side was not wearing horns and sprouting a tail or trying to enslave all humanity in some kind of theocratic nightmare of a world that would take away your access to internet porn or ban your Girls Gone Wild videos.
It was a remarkable experience re-reading the dozen or so posts I wrote on the Schiavo matter. I was surprised at the depth of feeling, the emotional temperature of the articles. I remember some of them were extremely easy to write because the feelings the Schiavo matter engendered made the words flow from a place I had never written from - the heart. For a someone who considers himself something of a rationalist, this is unsettling. I found that I cared about “big things” - things that poets and novelists spend a lifetime trying to capture and put on paper. For instance, here I tried to distill 2000 years of western civilization’s thinking on life into a couple of paragraphs:
The rules that societies set up nearly two thousand years ago to take the decision to end life out of the hands of humans and place it in the hands of the almighty were a radical departure from classical societies in the past. Both the Greeks and Romans routinely murdered the weak, the lame, even the sickly. Female children have been the target of post natal murders for thousands of years with the Chinese government going so far as feeling it had to issue an edict against the practice within the last two years.
But the radical values of Christianity that posited the notion that God was in every human being not just up on a mountain or in the sky started to mitigate against the wanton slaughter of the helpless ones. When nation states formed in the late middle ages, the strictures against these kinds of killings were put into law.
But the real answer has to do with what’s unfortunately come to be known as “secular humanism†or more accurately, †human centrism.†This idea that we are the supreme arbiters of the universe (or at least this insignificant little corner of it) took hold at the turn of the 20th century as progressives fervently believed that both science and government, if used properly, could make this planet a secular Eden.
I can say with certainty that I’d never written anything like that before, although I must have had those thoughts for years. In a similar vein, I wrote this:
Human beings are the only creatures on this planet who are capable of contemplating their own death. This quirk of evolution has allowed us to create a grand mystique around a perfectly natural biological process that otherwise would remain, as it does in the rest of the animal kingdom, an instinctual matter. The problem is, no one wants to either contemplate it very much or talk about it. Most of us take the attitude that “we’ll cross that bridge when we come to it.â€
Well, we better start thinking about it. As it stands now, the advocates for throwing away human beings as if they were nothing more than garbage bags full of rancid water and smelly old bones are winning. And the reason they’re winning is simple; very few people are paying attention.
My point then and now is simple: A dramatic change has occurred over the last 25 years that has radically altered the very definition of life. I wrote about here:
As monstrous as the rationale given by the granddaughter sounds, the outrage being committed here and elsewhere in the United States is not by confused, grieving, or even inconvenienced or greedy relatives; the crime against human dignity here is being committed by a medical community who has decided that their ever narrowing definition of what “life†is has gone beyond the simple mechanics of how the human body works and entered a metaphysical realm that used to be reserved for priests, shamans, rabbis, and philosophers.
In short, they see themselves as a new strata of healers, a class of medical High Priests whose knowledge and experience regarding human health are now augmented by insight into the mysteries of consciousness itself. They are aided and abetted by ethicists that justify their actions, scientists who support their conclusions, lawyers who keep the legal ground from turning into quicksand beneath their feet, and a certain segment of the population that puts their faith in the ability of humans to glean eternal truth from empirical observation
This last was written when an Alabama woman was dumped into a hospice by her granddaughter despite a treatable condition. The woman, Mae Magourik, died a couple of months later. This fact doesn’t obviate the need to search our hearts on these matters and try to come to a consensus as a society about some very fundamental issues. What is life? Do we ration life giving care? Who is worth saving? Who makes that decision? Should we embrace euthanasia?
As I reread what I wrote about the Schiavo matter, I realize that, in a purely selfish way, the debate allowed me to know myself a little better. But was I right?
Clearly those who believed that Michael was the devil incarnate and that Terri had a chance for some kind of recovery were wrong. However, I find the gloating on that score this morning despciable and only confirms my belief that there were many who saw this issue as a way to bash the Christian right. That said, I can see where my initial unease with getting the Congress involved (though I supported it at the time as necessary) was well justified. I should have realized what would have happened when politics was added to this mix. Nitroglycerine added to gasoline is never a good idea especially when there were so many standing by with lit matches. I believed prior to Congressional interference (and still believe) that given the initial circumstances, I was right to join this fight.
Jody, who blogs at Steal the Bandwagon and is of one mind with Beth at My Vast Right Wing Conspiracy echoes that thought:
I don’t want to name names but some people hijacked a wonderful purposed group and created a screaming parade of psychotic idiots who were emotional and crazed and blind to the law. And honestly, I was one of them. I backed off when someone asked me, what do you want them to do, storm the nursing home and kidnap her like they did Elian Gonzalez…oh…and something sunk in my heart because I knew I was losing a battle.
Please don’t take this as a criticism toward Blogs for Terri as a blog or even as a group, I just feel that it got a bit “crazy†toward the end. Sometimes when someone believes something so much they become zealous and blind to anything but their end goal, usually when that happens, they fail to change minds because people just turn off. Are you surprised to hear me say this? Maybe.
I’m not surprised that someone like Beth, whose initial advocacy for Terri is what got me involved in the first place, would reach this conlcusion. The Randall Terry’s of this world were the ones that made me realize how much of a circus the battle had become. And when self-aggrandizing charlatans like Terry (or some of the self-important, Christian bashing strutting peacocks who came down on the opposite side of this issue) push themselves to the forefront of a debate like this, all hell can break loose. And it did.
Some bloggers have been fairly mild in their criticism this morning. Bill Ardolino:
This doesn’t critically undermine many of the ethical arguments on either side of the issue, but it certainly kills much of the over-the-top hyperbole and inaccuracy surrounding her condition.
Surprisingly understated and well said. I wish John Cole had been as circumspect:
Terri Schiavo had to be kept alive because of THEIR moral beliefs, not hers and her husbands. And because we didn’t allow or accept a political (and had they had their way, a judicial) assault on the most personal aspect of someone’s existence, their mortality and how to handle their end-of-life decisions, we are to be shamed. Because we didn’t have the necessary arrogance to tell Terri and Michael Schiavo to live by someone elses definition of life, we are villains. Because we felt that personal decisions should remain personal (to the extent that the Florida legal system allowed them to remain personal), we support a culture of death. It is nonsense, it is offensive, and it can’t go unchallenged.
And that is all I am going to say about Terri Schiavo, absent some egregious silliness popping up. It is over. Let the women and her husband and her family rest in peace. I am sure you all will find someone else to use to your political ends in little or no time, but, for now, it is time to let Terri Schiavo be
I think that John is using a broad sword here when he should be using a scalpel. First and foremost, government does indeed have an interest in insuring that viable life is protected. In the case of protecting life, there is no such thing as personal. I believe that government should protect any life that’s viable outside of the womb. I also believe that government has a right to protect people at the end of life who may be afflicted with a variety of ailments, but are nevertheless capable of feeling love and giving affection in return. The elderly who are summarily dumped in hospices and left to die because they suffer from dementia or Alzheimer’s disease are being, in my opinion, murdered. There is no ethical rationale for this practice. And it’s only going to get worse.
That said, I think Mr. Cole is correct in saying that politics should be kept out of these decisions. The problem, of course, is that’s extraordinarily naive. Living in a free society, the confluence of government and politics assures that these issues will take on a political character. Should individual cases be splattered all over the news? There I agree with John and hope from here on in the debate on these matters can be kept in the realm of the general rather than the specific.
Perhaps what surprised me most about the Schiavo matter was the depth of feeling it aroused on both sides. Yes there was a lof of ignorant Christain bashing as there was some unconscionable name calling and moral posturing on the right. But by and large, this was the result of strongly held personal beliefs reflecting the cultural, religious, and political realities of the individual. And if, like me, it made us think about these issues and learn something about ourselves, an enormous amount of good came of it.
UPDATE
There were a couple of other reactions I wanted to get. First, the Captain:
What we have left are the issues that started the debate in the first place. Unlike today’s New York Times editorial’s assertion on the subject, this was not a “right to die” case. Terri had never requested to die, not with any transparency or formality. All we had for witnesses on her state of mind was a husband who waited until after he had won a substantial lawsuit to recall a conversation in which Terri made an offhand comment about not wanting to live on a respirator, and two of his relatives who corroborated him. The husband had a conflict of interest in the matter, having started a new relationship with another woman and fathering two children. On the other side, Terri’s parents and siblings were willing to take over her medical care and the responsibility for its costs.
Amd most of all, as the coroner affirmed yesterday, Terri was not dying.
Despite all of this, Florida decided that it would deliberately kill Terri on the basis of her husband’s wishes, without any living will or formal indication of her state of mind. As Rick Santorum said yesterday, such a ruling should have been allowed to receive a de novo hearing in federal court for a review, just as any death-penalty case would get. Without that, essentially Terri’s fate rested on two men, Michael Schiavo and Judge George Greer, who refused to release the case to another court at any point in order to get a new hearing on the merits in front of another judge. And when the state decides to kill someone who isn’t dying on their own — as opposed to stopping artificial breathing/cardiac support for those who lack any ability to survive without it — it should have more substantial oversight before doing so, and it should have more to rely on than an estranged husband’s belated recollection of a superficial, general conversation as its basis.
I agree with the Captain for the most part. The problem of judicial oversight of such cases is that it’s impossible to prove conflict of interest. In the Schiavo matter, Michael also had the diagnosis of recognized medical experts (who turned out to be for all intents and purposes, correct) on his side.
I agree that it should have come down to the fact that Terri’s family was willing to assume the burdens outlined by Mr. Morrisey. Why Michael did not take this easy and obvious avenue of escape will remain for me the biggest mystery.
For me, the whole tragedy surrounding Terri and the people who wanted her dead didn’t hinge on how severely brain-damaged she was. She was alive and wasn’t on life support, and her husband’s credibility was extremely low, too low to trust his assertion that Terri wanted to die if ever severely brain-damaged. Forget about what you’d want if you were ever in the same condition. Take yourselves out of the equation.
The way they killed her was appalling, and I was angry for a long time afterward. I’m giving you a heads-up. Don’t be alarmed or disgusted by the liberal media and liberal bloggers (and some conservatives, too) declaring that Terri’s wayward husband is somehow “vindicated†by the autopsy report. The doctor-induced starvation was immoral.
I agree. Michael was in no way “vindicated” by the autopsy report. If you believe he was incorrect in seeking Terri’s death in the first place, there’s no vindication or justification for that matter possible.
Michelle Malkin has done a thorough examination of the autopsy report:
Michael Schiavo and his supporters and doctors have long maintained that Terri suffered from an eating disorder. In interviews with Larry King, in countless newspaper articles over the past 15 years, and during his successful malpractice trial against Terri’s primary care physician, Michael Schiavo stressed his wife’s bulimia-related low potassium level as the cause of her initial collapse. Schiavo won $1 million in damages on the grounds that Schiavo’s obstetrician had failed to diagnose bulimia.
Unquestioning journalists ran dozens of stories echoing the claim: “Eating disorder is real issue in Schiavo case,” “Terri’s life a lesson in dangers of bulimia,” “The lost lesson of Schiavo case: the dangers of eating disorders,” etc.
The autopsy report spends three-and-a-half pages debunking Schiavo’s claim, as well as the related claim that she had a heart attack (or, more medically precise, myocardial infarction). But if mentioned at all, the news reports I have seen have downplayed and buried these astonishing revelations (revelations which bear directly on Schiavo’s credibility regarding his claim that Terri would have wanted to die).
Viewing the issues in light of Michael’s misstatements about Terri’s “eating disorder,” I agree with Michelle that it calls into question other statements made by Michael. But as other commenters have pointed out, Michael’s claim that Terri wanted to die was buttressed by her best friend - Michael’s sister - and must be taken at face value.
I wanted to get the reaction of a blogger from the left but have been disappointed and outraged at the gloating and recriminatory tone used at the sites I’ve seen. If someone wants to point me to a site that treats this issue with the seriousness it deserves and in a non-political manner, I will gladly link to it.
UPDATE II: THE “ASK AND YE SHALL RECEIVE” EDITION
No sooner did I ask for a sensible post from the other side of this issue than Mona in the comments section of this post answers my prayer:
Mr. Moran, I volunteer in a program that services retarded adults, some of whom have IQs as low as 15. The profoundly retarded are entirely incapable of comprehending the purpose of a feeding tube, or what it would mean if it were removed. The highlights of one individual’s day is seeing his mother visit and he coos at her, and he also enjoys playing with his feces, which the staff seek to prevent his doing. The idea he could comprehend the implications of an order to remove a feeding tube and beg to live is absurd, and he HAS a measurable IQ. Terri had none at all.
Lies were told. Many of them. All buttressing an increasingly rancid attack on the Florida judiciary. Judge Greer had to begin living under armed guard.
Mr. and Mrs. Schindler can be entirely forgiven for deluding themselves that Terri was interacting and responding. But the cretins, legal and otherwise, who surrounded them and nurtured these fantasies and peddled them all over the media, can only be reviled.
I certainly hope that Mona is not advocating euthanasia for her young retarded charge. Are we going to define life now as reserved for those who can comprehend what it means to die? That’s a world I don’t want to live in and will fight to prevent. That said, please read Mona’s entire comment as she makes some excellent legal points.